After receiving a Parkinson’s diagnosis, it can be challenging to know what steps to take next. Regardless of your age or the stage of your condition, there are universally beneficial strategies to explore. Some approaches, whether they involve adjusting your lifestyle, mindset, or both, might work better for you than others. While the amount of advice available can be overwhelming, there are essential starting points you can consider. Remember, it’s normal to need some time for the diagnosis to sink in, but try not to despair or make hasty decisions before becoming informed. Many resources are available, so take your time and understand that navigating this process is a journey.
If you’ve just received your diagnosis, your first step was likely to consult with your primary doctor. However, it’s crucial to have a medical team you trust and who are well-versed in Parkinson’s disease. Your regular doctor and neurologist should be knowledgeable about Parkinson’s and should understand your unique needs. Not all doctors have the same level of experience with Parkinson’s disease; those with specialized expertise are better equipped to tailor treatment plans and suggest effective medications. Consider consulting a movement disorders specialist if some symptoms persist despite current treatments. These specialists are updated on the latest advancements in Parkinson’s care. Diversifying your medical team and finding reliable professionals can significantly impact your quality of life. Resources such as home care and personalized elder care services can assist in navigating these options.
Staying active is crucial. As we age, our bodies naturally deteriorate, but having Parkinson’s shouldn’t mean giving in any more than aging itself. Becoming active now, before symptoms progress, can help you maintain your activity level for longer. Consider activities such as hiking, swimming, gardening, or biking, and incorporate them into your daily routine. It’s never too late to start something new. Regular physical activity can help build resilience against physical decline and manage Parkinson’s symptoms. Equally important is maintaining mental and social engagement—whether it’s through work or social activities. These aspects are just as vital as physical exercise for overall well-being.
Honesty about your condition is crucial, though it doesn’t mean you have to broadcast it to everyone. It’s important to be open with family and close friends, as they play a key role in your care and support. Making openness a habit can benefit your long-term well-being.
Monitor how your body responds to medications and treatments, and communicate these observations to your medical team. Family, friends, and certified caregivers can assist you in tracking these changes. Participating in research can also be beneficial, as it contributes to the understanding of Parkinson’s disease and may offer you new treatment opportunities.
Seek information from your doctor or certified caregiver to read at home, connect with others with Parkinson’s in your community or online, and explore resources like the National Parkinson Foundation, ClinicalTrials.gov, and the Michael J. Fox Foundation for Parkinson’s Research.